tag:blogger.com,1999:blog-6140014302576063245.post5522824359252079755..comments2023-10-24T02:16:11.413-06:00Comments on Where will this little foot take him?: Looking for a new planJo-Annhttp://www.blogger.com/profile/11890092522436064041noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6140014302576063245.post-51833263194557337162009-02-01T17:08:00.000-07:002009-02-01T17:08:00.000-07:00My spine is tingling as I read this post -- and no...My spine is tingling as I read this post -- and not necessarily in a good way, but in an "I SO GET THIS!" kind of way. All of the things you've been through ... so much doubt! There's not a whole lot worse than being in the "expert" care of someone who doesn't seem to know what's going on with your precious child. It's a heart-dropping feeling.<BR/><BR/>I will never stop being amazed at how a mother just KNOWS something is wrong. Seriously. I never really experienced this much myself until Grace came along, my child with a "problem." Every step of the way, I just KNOW. I never trusted that, though, until I joined the clubfoot group. I had parent after parent after parent say, "Trust your instincts -- they're always right!" Sure enough. <BR/><BR/>You experienced this in a profound way when M. was an infant. You just KNEW. I experienced this in a huge way with Grace when she turned 2. Unfortunately, we had started out with a doc who "said" he was a Ponseti-follower but then promptly said he does his own thing b/c he has greater success than Dr. P ever did. At the time, we knew nothing of Dr. P -- we just trusted this guy completely. As we went along, though, my gut kept screaming -- something's not right! But I didn't listen -- what do I know, right?<BR/><BR/>But then when Grace turned 2 it was summer and she was barefoot all the time. I just KNEW, in that mother-way, that she was relapsing. I was completely and utterly convinced and I was terrified. But no one else saw it, not even my husband. I don't fault anyone -- it's a mom-thing! Finally, after about 2 months, my husband noticed, and then my parents. But the one person I could NOT convince was her doctor. He basically told me I was overreacting, and that I had just better get used to the fact that my daughter will never be 'normal' and this is what her foot will always look like. Sorry ... NO WAY.<BR/><BR/>We sat on this horrible relapse for a year, our dr. refusing to listen to me. This past Aug. we switched to a true Ponseti doc, went through serial casting (and I had ALL the fears you wrote about!!!!), etc. -- and now it's just amazing. I do still freak out (I blogged about that today) but my goodness, it's just all pretty uncanny.<BR/><BR/>sorry that was so long -- I just wanted to share a bit of our story with you and encourage you along your uncertain path. While our experiences are different (we're not dealing with any nerve damage), I was in the exact same spot as you are just a few short months ago, so I truly know what you're feeling! Hang in there, and if you need anything at all I'm only a blog away! :)Suehttps://www.blogger.com/profile/16907744199449543340noreply@blogger.comtag:blogger.com,1999:blog-6140014302576063245.post-16350203786665486872009-01-31T21:34:00.000-07:002009-01-31T21:34:00.000-07:00I am glad you have joined those groups. I hope you...I am glad you have joined those groups. I hope you find what you need with them. <BR/><BR/>I think Matthew would find ways to be a daredevil no matter what. <BR/><BR/>I'm thinking positive for you as always.Sarahttps://www.blogger.com/profile/16685887988265673434noreply@blogger.comtag:blogger.com,1999:blog-6140014302576063245.post-77437405995502598632009-01-31T21:17:00.000-07:002009-01-31T21:17:00.000-07:00I'm sorry you are feeling like thi Joanne, I know ...I'm sorry you are feeling like thi Joanne, I know it's not easy.<BR/><BR/>I'm sure you will get some advice from the groups you are looking into and I would think there should be more Dr. out there now.Jodi Pattersonhttps://www.blogger.com/profile/18400660990275972485noreply@blogger.comtag:blogger.com,1999:blog-6140014302576063245.post-26588939292957357322009-01-31T16:44:00.000-07:002009-01-31T16:44:00.000-07:00{hug}I hope you are able to get some good info fro...{hug}<BR/>I hope you are able to get some good info from those groups. Try to not be afraid of what an email from the DR. might say, but know that it could spell a positive result in the long run. I know this may not help, but you know I will offer whatever support I can. Call me if you need to.Jenniferhttps://www.blogger.com/profile/01494323376418325794noreply@blogger.com