We were at the hospital this morning. Matthew was sore today, not really sure why, so Dr K didn;t get to see him moving well, he was limping.
Nothing stellar to report today and I am bummed. Could be the head cold, PMS and cramps I have today, but I am feeling down about it all.
Dr K feels things are looking good, but that Matthew needs some modifications to the AFO. His front foot is still turned inwards so the AFO needs to be built up to push it over. I asked about him walking on the outside of his foot when the AFO is off. He said that is normal and the reason why he needs to be wearing it 8-10 hours a day. Sigh. We are doing about 6-7 right now so not enough and we are coming up on hot weather. AFO's are so hot to wear. Poor kid. Gonna be a tough summer.
So, back to the orthotist we go for the adjustment, then back and forth til we get another good fit. SOmetimes it fits well after 1-2 adjustments, other times it takes numerous ones. We go on Monday. I am going to ask that Ken put a rubber bottom on the AFO as well. We are having a tough time finding shoes this season. Seems that all the shoes are too narrow for an AFO. With a rubber bottom, he should be able to go without shoes in the house, and maybe in the yard this summer.
Then once it fits well, it is back to see Dr K to make sure he is happy with the fit.
Guess I am just tired of it all right now. Not a good time, we still have a long road ahead of us.
tucked away on a mountain side
4 weeks ago