Tuesday, June 28, 2011

He's Got Rider Pride

We are back from St. Louis. These 36 hour visits are tough on us both.

So some answers. First, yes. He is again in a cast. This time, green and black (there is no white) for his favorite CFL team, the Saskatchewan Roughriders. As you can see, he is a very proud Rider fan.

It is a full leg cast. The last time we did a half leg cast and honestly, everyone involved from myself to Dr Dobbs to Steve who we saw today, feels it was of no benefit. Sadly, it will be the last half leg cast.

Now for the answers.

The callous that has been developing on his heel is purely skin. YAY!!! Did you hear me scream YAY at about 8 am yesterday? It was that much of a relief.
This is what the callous looks like. You can see by the shape why I thought that it could be bone being laid down.

And his leg length discrepancy seems to be holding steady for two years now. Again, another big YAY!!!

We had to wait a long time to see Dr. Dobbs. The man has become increasingly busy. We don't mind waiting, honestly. We travel a long way to see him, and he knows what he speaks of and he knows how to deal with this. We waited for about 4 hours for him. And this time we did NOT leave the room! Last time, we made the mistake of going to the bathroom and getting a coffee and missed him! Had to wait again!

So this time, we waited. And when he did get to us, he apologized, and Kristina apologized and everyone else apologized. What a breath of fresh air. They didn't need to apologize. We know how busy he is. We know how fortunate we are to be able to see him. We know how amazing that whole team is. And how humble they are. What a wonderful group to work with. And how wonderful for them to recognize us in our wait. So many times you see a doctor and you feel like a number. NEVER with Dr. Dobbs and his team.

And the update.

His foot is tight, but that is just what is going to happen when he grows. And if you remember, he just grew out of all his shoes in March. So we are definitely dealing with yet another growth spurt.

Dr. Dobbs is pleased with Matthew's lateral motion. If you didn't see it before, in April we saw this which I was thrilled with. And it has gotten even better. Will have to video tape when the cast is off. Amazing when a year ago it was barely a flicker.

He said with this getting stronger, that one day it would take over and work with us, keeping his foot in place.

Wow. It is like seeing that light at the end of the tunnel, no matter how small or dull. There it is. Finally.

I asked about physio. Dr. Dobbs wants him back at weekly physio. We had dropped it to every two weeks. Will step it up again. Dr. Dobbs also said, "If I remember correctly, his p/t willing to tape?" Yes. (In fact Steve had said that he would tape rather then cast so I could go to my reunion) Dr. Dobbs would like Matthew's foot to be taped after every physio appointment and leave it on for a few days. Just to get that extra stretch. Will do.

And to keep up with the E-stim. Yes, most definitely. Dr. Dobbs asked what Matthew had it turned on to at home. I said '3', almost cringing, expecting him to say that wasn't enough. But never from him. He said that was fine. In fact, I told Dr. Dobbs that Steve was talking about using a stronger E-stim machine while at physio. I said that Steve told me that he pushes on Matthew like he does an adult and that Matthew never complains. He smiled and nodded. Like he knows, because I think he just does know.

And just before he was casted, I shared with the team a poem Matthew had written in school. They wrote many poems, subjects always up to them.

This was the frame work for Matthew's Cinquain.

Cinquain Pattern #2

Line1: A noun

Line2: Two adjectives

Line 3: Three -ing words

Line 4: A phrase

Line 5: Another word for the noun.

And this was his poem.

St. Louis
helpful, kind
helping, casting, caring
helping people when they have a broken leg

All of the people seemed touched. But Dr. Dobbs especially. I said that St, Louis and casting was a big part of his life. Dr. Dobbs said 'Definitely.'

Yes. Definitely. That city, those casts, and more importantly, those people involved have become a huge part of that little 8 year old's life. Slowly, slowly, bit by bit (sorry, can't help but quote the Digging-ist Dog) we are assembling an amazing team for Matthew.

One day, we will emerge from this tunnel. I know it now. I can see the light.

Sunday, June 26, 2011

Safe and Sound in St Louis

After a long day of travel, we are here at Haven House in St. Louis. Matthew doesn't want a cast, but doesn't seem to upset when I tell him there is a good possibility. We brought the crutches just in case.

Tomorrow will be another long day. At the hospital by 7:30 until 2:00. Then back to the airport. We arrive home at 10:00 pm, so by the time we clear customs and cab home it could be close to midnight.

Will update Tuesday if I can.

Thursday, June 23, 2011

Back To That Foot

Again, not posting. So much going on. If I find some time, I will share.

Back to that foot. Matthew's next appointment in St. Louis with Dr. Dobbs is Monday. Four days from now. I am now convinced he will be in a cast. So much so that I have cancelled our plans for that week.

See, I was supposed to go to my 25th high school reunion. Yes...you read that right ...25th. But if Matthew is in a hip to toe cast, I can't ask him to ride in the back of a vehicle for 6+ hours. Only to arrive in a place where he can't do any water activities, quading, or anything that doesn't include sitting.

Yes, it is true that I haven't seen some of these people for 25 years. Yes, it is true that I was actually looking forward to catching up. Seeing some of these people, hearing about their adventures. Seeing pictures of their kids.

But that's ok. In the long run, Matthew is what matters. We waited 11 weeks for this appointment. And it is needed. He is on the outside of that foot so bad now that even his teacher today noticed. Not good.

Matthew had physio yesterday. First Steve told me that he could not believe how hard he pushed on his foot. As hard as he does on an adult... and Matthew NEVER complains. In fact, he said that some times he thinks to himself, 'I shouldn't do this, he's only 8'. Wow. Then he told me that I may have something there about that 'callous'. He said that I may be right that there is more to that callous then meets the eye. He was happy to hear that I emailed Kristina and that Matthew will be X-rayed for leg length AND his heal. He also agreed with me that a cast is most likely needed.


Did I actually hear that right? Did my always positive 'I don't think he needs a cast' Steve say that? Yes. Bless his heart, when he found out I was cancelling my 25th reunion, he told me to tell Dr Dobbs that he would be willing to tape again, and to teach me to tape.

Wonderful idea. But not the answer. He needs a cast. And even Steve knows that this time.

Matthew knows this too. I have to tell him my suspicions. He is ok with it. Kind of.

Enough negative. Here is today's positive.

I was at the school today volunteering. They had an old fashioned sports day at school. Great fun! Matthew's teacher knows of his upcoming trip because he is going to miss the last two days of school. She told me that both her and the phys ed teacher are both in awe of him. That despite his foot problems, he is one of the fastest runners, strongest athletes, never give up kind of kids they have ever seen.

Yes. That is Matthew.Go hard in everything. Always.

Love that.