Thursday, April 17, 2008

Feeling down

Been so bummed all day, I decided to take some photos so I could do a comparison. Thought it could make me feel better.

Pre surgery photo is first, post surgery second

So, his foot is looking better. He is standing flatter, his foot is straighter. Not perfect.

Kids can be cruel, any difference will garner name calling.

I guess I am secretly wishing for perfect.

Nothing stellar to report

We were at the hospital this morning. Matthew was sore today, not really sure why, so Dr K didn;t get to see him moving well, he was limping.

Nothing stellar to report today and I am bummed. Could be the head cold, PMS and cramps I have today, but I am feeling down about it all.

Dr K feels things are looking good, but that Matthew needs some modifications to the AFO. His front foot is still turned inwards so the AFO needs to be built up to push it over. I asked about him walking on the outside of his foot when the AFO is off. He said that is normal and the reason why he needs to be wearing it 8-10 hours a day. Sigh. We are doing about 6-7 right now so not enough and we are coming up on hot weather. AFO's are so hot to wear. Poor kid. Gonna be a tough summer.

So, back to the orthotist we go for the adjustment, then back and forth til we get another good fit. SOmetimes it fits well after 1-2 adjustments, other times it takes numerous ones. We go on Monday. I am going to ask that Ken put a rubber bottom on the AFO as well. We are having a tough time finding shoes this season. Seems that all the shoes are too narrow for an AFO. With a rubber bottom, he should be able to go without shoes in the house, and maybe in the yard this summer.

Then once it fits well, it is back to see Dr K to make sure he is happy with the fit.

Guess I am just tired of it all right now. Not a good time, we still have a long road ahead of us.

Thursday, April 10, 2008

Waiting and worrying...

Well poop.

I was so geared up to head in to the hospital this afternoon for Matthew's first post-op cast free appt with his surgeon. I want to know if he sees Matthew's toes moving, what he thinks of his running, the foot turning in slightly, and if we should start P/T.

But the hospital called and have canceled the entire afternoon clinic. We are re-scheduled for next week.

I am bummed. I guess I just want a professional opinion on his progress. I am nervous because when he is out of his AFO, he walks on the side of his foot. And he is sore. So worried about regression after all he has been through. I want his pain and suffering to be a good outcome. I didn't realize how much I had been looking forward to this appt, until it was canceled.

I suppose another week shouldn't change things. I keep repeating the Mark Twain quote to myself...

I have been through some terrible things in my life, some of which actually happened.