Thursday, November 19, 2009

My Normal Seems... Well, Normal

Tuesday was Matthew's physio day. He was actually looking forward to it. He has really bonded with Steve. And, well really, how can he not? Here is a young, cool guy who thinks Matthew is the best thing since sliced bread. Seriously. There is some sort of magic there.

And my husband booked a p/t appointment for himself at the same time. Perfect. I dropped Matthew off at 4:15 and headed to the reception desk with Ryan to head to home to make dinner.

Stopped at reception to make Matthew's appointment for next week. The owner of the physio shop stopped by to say hello and ask me, "So, what did you do to your son? Soccer accident?"

I replied with "No. He was born with a neuromuscular clubfoot due to nerve damage. We are trying to keep his heel cord loose and his talus in position to avoid more surgery."

He looked, well, speechless. After a few seconds, he said "Surgeries?"

I gave a brief outline... tenotomy, medial release, tendon transfer, calcanial ostiotomy... that we were really trying to avoid another tenotomy or worse. Or at least post pone as long as possible.

He stepped away from me. Looked at Matthew, and Steve. Walked back to me. Said, "Wow." Deep breath. "Steve is great." And left.

Some days I forget that my normal, Matthew's normal is not that normal. But I think that as long as I can keep him feeling normal through this process, the better off he will be.

Two insights from p/t this week.

1. Giving Matthew Motrin helps immensely. I forgot last week but remembered this week. Steve noticed a huge difference. Will try not to forget from now on.

2. People in the office for treatment while Matthew is in will receive less care. Craig said he will never book another appointment at the same time as Matthew. Steve was just to focused on Matthew.

Hoping that remains a good thing.


Sue said...

As a parent in this situation, I would be flying high ... What a tremendous gift you have in Steve!! Good service is one thing; good treatment is another ... but to have a good, caring guy who truly "gets it" is just the icing on the cake. I can't wait to hear what good results come from this relationship!

Mrs. Bird said...

I hope so too :)

Jennifer said...

You have found some very special people to help Matthew. I would like to think there really isn't a normal per se..... everyone's circumstances are unique and their own. I say this cause every time I think things are going along normally..... something changes to keep us on our toes. {hugs to you}

Michelle said...

Hi Joann! Thanks for your comment - it's so good to 'meet' parents going through similar circumstances. Yes, you can absolutely add me - I'm still new to this, so I'm going to try to figure out how to follow you too.