I can not believe it. In fact, I am still at a loss for words.
Last night, just 24 hours after joining a clubfoot group and introducing myself, I was contacted by someone who also has a son who has clubfoot with nerve damage.
This is the first time I have ever talked with another parent who has the exact same problem as Matthew. I felt like I was reading our own story when she talked about her son having a Nerve Conduction Test to confirm the nerve damage and an MRI of the spine to rule out tethered cord.
She told me that she knows of 8 other families in the US that have this unique problem and is inviting me to chat with some of them. Honestly. Speechless.
And the best news yet. She gave me the contact information for a doctor in the US who has dealt with this unique combination.
I will be composing an email and sending it off in the next few days.
I have not been so excited to contact a doctor in a long time!
My Colectomy - Day Two
1 week ago