Queue the corny circus music, I am about to leap through hoops. At least that is how this feels.
I was almost in tears Friday morning after talking with Kristina, Dr. Dobbs' nurse. I know that she can't give me much information until Matthew is seen, but it makes it hard to plan. Seems that the first appointment will or will not be an informational exam, will or will not be the start of serial casting, will or will not be a pre-surgery appointment. This first appointment will or will not be the start of a series of appointments that may or may not be every week for as long as it takes. I know that they can not say for sure until they actually have Matthew's foot in hand (literally) but it makes things so hard.
I started to worry about all of this. What will I do if they need to serial cast him for 4-6 weeks? Would I actually fly back weekly at a cost of $1000 just for flights every week? Not to mention at least one night stay as the flights from here to there are crappy and take a whole day. Or would I stay there with Matthew? Leaving Ryan? Ship him off to Vernon for 4-6 weeks where he would most likely be so sad to be away from Mommy, Daddy, Matthew, his house and all his friends? Do I take both boys with me and live there for 4-6 weeks? The thoughts had me close to tears. Things were going fast with very little information to calm my brain.
Then, in the afternoon, I got a call back from Alberta Health Care out of Canada care department. All of a sudden, this fast train I was on derailed right in front of a circus tent. Seems that in order to get out of Canada care, there are many forms and many hoops to jump through just to get the chance for a committee to sit down and look through the information. They will then decide if this treatment outside of Canada is deemed necessary and not found in Canada. Then I will be able to access funds. How much and for what, I have no idea. Hoping the forms will explain that better. Hoping they arrive early next week.
Some of the hoops to jump through...
I need a letter from his current surgeon stating that he needs the care of the doctor in the states. Not sure why but this feels like a big hurdle. I have to go to his surgeon of six years and say "ya know, I think things are going nowhere with you, I want to see this other guy and you need to write a letter saying so" Feels awkward... but is a must. Will have to make an appointment.
I need to send Matthew's health history. The lady on the phone said "only send what is relevent to this health issue" I chuckled. His first appointment was at 4 days old and he is now 6 years old. His file at the children's is now over an inch thick. How do I get a copy of that and send it?
And the worst part, they don't meet again until March 18. So here we sit, waiting...
tucked away on a mountain side
4 weeks ago