Thursday, January 22, 2009

Perspective

I can’t believe Matthew is one year post-op today. Here is where you can find out more about his surgery. While we waited for hours in the waiting room, I was visualizing where he would be a year later. It is kind of a bitter sweet day. I had thought that by now the curvature in his foot would be corrected and that he would be able to hold his foot in neutral. And the biggest wish, I had hoped he would have a heel strike when he walked. So, here we are at a year and his foot is still curved, he does not have a heel strike, and he is facing more surgery within the next 6-10 months.

I have to keep reminding myself. His foot will never be normal, but it can be better. If I stop comparing him to regular kids and start comparing him to him, things seem better. Here is what I mean. The following photos were taken a year apart. There is a lot of improvement.

Jan 2008
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Jan 2009
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See, better. Not normal, but better. Also, you can see where I got the title for this blog in that last pic. His foot is now a good 2 sizes smaller then the other.

Jan 2008 he could not put his foot flat on the ground
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Jan 2009 darn close to flat!
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Jan 2008
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Jan 2009 not much improvement and his calf muscle is even smaller then ever
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Now for the best part. He is able to move his foot to neutral and hold it there. Well, not quite neutral. But he can move it upwards and hold it. Something he has never been able to do before.
video

So, after a year of surgery, botoxing, casting, AFO's, physio, and most importantly running, playing and being a kid, we have success. Matthew teaches me new meaning to that word every day. This journey that we are on is still long but I have no doubt that this little foot will take him where ever he can dream.

6 comments:

MamaJenn said...

{hug} You and your son's spirit amazes me.
Things have changed, and will continue to. :o)

tara @ kidz said...

He is so strong and courageous! I can't wait to see where he is Jan. 2010!

Chloe watched the video with me and she was soooo into it! She was smiling, kicking, and trying to touch her friends on the video, especially those toes (she loves toes)!

Greg and Heather said...

Thank you so much for your kind comments on my blog! Just wanted to say thinking of you and your family as well and sending prayers your way! Your boys are so handsome and what two wonderful blessings you have!

Kristina said...

I jut happened to stumble across your blog. I can't believe how much the boys have grown since I last saw them. And wow such amazing progress on Matthew's foot! It has come along way and I hope it continues to progress.
Best wishes to you and your family from a friend you used to know.

Sarah Lena said...

Thank you for the positive messages. You and your little ones are definitely an inspiration!!

Me said...

The foot pictures are just fascinating. Thanks for posting them!